Stricken with the Flu

Even when you do everything possible to avoid the flu, there will be times when you are unsuccessful. I know of what I write as I came down with the flu Sunday almost immediately after the Super Bowl exactly a week after my husband had it. My fever was 102.5 [and] I had chills for … Continue reading Stricken with the Flu


Illness in the House

Sadly, I am waking up to a house of illin' this morning. Everyone except me is sick with a stomach bug of some sort which is giving rise to this post. How exactly does an immune compromised wife [and] mom care for her sick family while protecting herself from catching it as well? Well, we … Continue reading Illness in the House

Rosemary [and] Remembrance

"There's rosemary; that's for remembrance: pray, love, remember." ~William Shakespeare It was Sunday morning at the hospice house. It had been 3 days since I spoke with my mom for the last time as delirium and paranoia set in [and] she finally slipped into a coma. Her last words to me, “hey Stephie!” followed by the … Continue reading Rosemary [and] Remembrance

An Open Letter to Healthcare Providers

Although professionally, I was a pediatric oncology nurse practitioner prior to my heart transplant, I write this letter as an individual who lives with long-lasting late effects stemming from the successful treatment of Ewing's Sarcoma as a child in the late 1970's along with the daily implications of immunosuppression. Dear Healthcare Providers, I write because I … Continue reading An Open Letter to Healthcare Providers

Participating in Your Care: the Benefits

A few days ago I posted a link to a review paper looking at the benefits of individuals participating in their healthcare [and] the healthcare decision-making process. CLICK HERE to read the review piece. Up until the last decade, the practice of medicine could be described as paternalistic with blind obedience on the part of … Continue reading Participating in Your Care: the Benefits

Immune Compromised: Minimizing Infectious Risk

Well, cold and flu season has arrived, so so I thought I'd take the opportunity to share with you steps that I take to protect my health and wellness during the winter months. I, like all organ recipients, am immune compromised [and] at increased risk of infection. You may not realize it, but organ transplant … Continue reading Immune Compromised: Minimizing Infectious Risk